Cystic Fibrosis Support | Filotimo Foundation

Walk for Hope

October 23, 2024
Filotimo
Events

36th Annual Thad & Alice Eure Walk for Hope Date: October 13, 2024 • 9:00am-2:00pm Location: Angus Barn In the 35 years since it began, our flagship charity event has helped raise millions of dollars towards better understanding of and treatments of mental illnesses like depression, bipolar disorder, PTSD, postpartum depression, schizophrenia and anorexia. Each…

Filotimo Foundation Fundraising Gala

October 22, 2024
Filotimo
Events

Save the date for our upcoming Filotimo Foundation Fundraising Gala! Date: May 16, 2025 Location: Angus Barn Pavillion We hope you can join us on Friday, May 16, 2025 at the Angus Barn Pavillion in Raleigh, North Carolina. Check back soon for more information! For gala questions, tickets, and/or sponsorships please contact Kristine Lane, Kristine@filotimofoundation.com.

Carrier Screening: A Step Towards Informed Family Planning

October 21, 2024
Filotimo
News

Starting a family is a thrilling milestone. One important step in this journey is understanding any genetic health risks that might affect your child. NxGen MDx carrier screening offers prospective parents a deeper look into their genetic health, assessing the potential of passing on hereditary conditions like cystic fibrosis or fragile X syndrome. What Is…

Newborn Screening in North Carolina: Actionable Information for Parents

October 20, 2024
Filotimo
News

Newborn Screening Newborns in North Carolina – and all 50 states across the country – are screened for a variety of conditions at birth, including cystic fibrosis. The goal of newborn screening programs is to quickly identify conditions that can impact a child’s long-term health or survival so that treatment can begin right away. How…

Nicole’s Story: Starting a Family While Living with Cystic Fibrosis

October 19, 2024
Filotimo
News

Nicole “Colie” Kohr is an award-winning author, speaker, and advocate, known on social media as @cystic4real. Through her nonprofit, Colie Creations Inc., Nicole uses storytelling to champion the needs of patients and foster children. Her passion for storytelling began in childhood, where her experiences as a pediatric patient revealed the power of stories as a…

Cystic Fibrosis and IVF: A Journey Towards Parenthood

October 18, 2024
Filotimo
News

Filotimo Foundation’s partners at Atlantic Reproductive Medicine in Raleigh, NC offer support to men and women living with cystic fibrosis as they work to grow their families. In a recent blog post, Atlantic Reproductive unpacks how people living with cystic fibrosis can navigate having biological children, including: The post also explores the services offered by…