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Carrier Screening: A Step Towards Informed Family Planning

  • Filotimo
  • News

Starting a family is a thrilling milestone. One important step in this journey is understanding any genetic health risks that might affect your child. NxGen MDx carrier screening offers prospective parents a deeper look into their genetic health, assessing the potential of passing on hereditary conditions like cystic fibrosis or fragile X syndrome. What Is…

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Newborn Screening in North Carolina: Actionable Information for Parents

  • Filotimo
  • News

Newborn Screening Newborns in North Carolina – and all 50 states across the country – are screened for a variety of conditions at birth, including cystic fibrosis. The goal of newborn screening programs is to quickly identify conditions that can impact a child’s long-term health or survival so that treatment can begin right away. How…

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Nicole’s Story: Starting a Family While Living with Cystic Fibrosis

  • Filotimo
  • News

Nicole “Colie” Kohr is an award-winning author, speaker, and advocate, known on social media as @cystic4real. Through her nonprofit, Colie Creations Inc., Nicole uses storytelling to champion the needs of patients and foster children. Her passion for storytelling began in childhood, where her experiences as a pediatric patient revealed the power of stories as a…

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Cystic Fibrosis and IVF: A Journey Towards Parenthood

  • Filotimo
  • News

Filotimo Foundation’s partners at Atlantic Reproductive Medicine in Raleigh, NC offer support to men and women living with cystic fibrosis as they work to grow their families. In a recent blog post, Atlantic Reproductive unpacks how people living with cystic fibrosis can navigate having biological children, including: The post also explores the services offered by…

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